ea0051oc8.3 | Oral Communications 8 | BSPED2017
Macqueen Zoe
, Gardner Melissa
, Sandberg David E
, Ahmed Syed Faisal
Background: There are gaps in our understanding of the impact of conditions that affect sex development, such as DSD and CAH, on the parent and patient.Aims: The project aimed to explore whether patient reported outcomes (PRO), assessed by standardised questionnaires, could be integrated within routine paediatric endocrine clinic visits.Methods: Previous validated questionnaires were used to develop a parent Self-Report qu...